When Samuel was just three months old, a maid poured acid
down his throat. His injuries were so bad, nobody expected him to live.
But today, the 13-year-old goes to school, swims and hangs out with his
friends just like other kids.
The only difference? Samuel has never tasted food - something his doctors hope he will be able to do someday.
SINGAPORE
- Like most boys his age, Samuel Lim Hong Xiang, 13, loves music,
enjoys sports like badminton and spends hours on the computer, surfing
the Internet and playing games.
But unlike other teenagers, Samuel has never tasted food. For almost
his entire life, he has been breathing and feeding through tubes
inserted into his body.
He was three months old when a maid poured sulphuric acid down his throat.
On
June 29, 1999, the family had left baby Samuel at the flat of his
grandmother before going to work. The grandmother had gone out, but the
couple’s Indonesian maid Latifah was in the flat with him.
While
she was in the kitchen and Samuel lay asleep in the living room,
Sumiyem, 17, another Indonesian maid working with the family and jealous
of Ms Latifah, poured sulphuric acid into Samuel's mouth. She wanted to
get Ms Latifah, then 27, into trouble.
Sumiyem was jailed for eight years in 2000.
Tears
well up in Ms Tan's eyes as she recalls that day 13 years ago, and what
happened afterwards. Samuel was taken to the Paediatric Intensive Care
Unit at the National University Hospital. He spent six months there.
The
horrific attack left the infant with terrible scars, and also severely
damaged his tongue, throat and vocal chords. His upper airway was
completely blocked.
Associate Professor Daniel Goh, head of the
paediatric department, saw Samuel right after the incident. He recalled:
"Because the airway and the gut were badly burnt by the acid, his life
was definitely in danger. His prognosis then was very poor."
'Nobody expected him to live'
Samuel needed
two major operations to enable him to breathe and be fed, his father
said. Ms Tan learnt cardiopulmonary resuscitation (CPR) skills and kept
vigil by her baby's side round the clock after he returned home.
She remembers waking up countless times during the night to feed and check on him.
"There
were so many times when he choked on his phlegm or his airway got
blocked, and we had to rush him to hospital in the middle of the night,"
she said.
"Once his whole face turned blue and I could not
resuscitate him even after I performed CPR on him.
Somehow, out of
instinct, I used a pair of scissors and snipped off his tracheostomy
tube. Then I put in a new one for him before rushing him to hospital."
A
doctor told her that Samuel probably could not breathe as his
tracheostomy tube could have been blocked, and she had done the right
thing by cutting the tube.
"Nobody expected him to live," recalled
his father, Mr Lim Boon Keong, 41. "The surgeons said they would try
their best. The rest would depend on him."
Amazingly, baby Samuel pulled through.
"It's
a miracle that he survived. Doctors later told me that he is a very
special child. The pain that my wife and I went through was
indescribable," said Mr Lim.
But ask Samuel today and he describes his life as if everything is pretty normal.
What
is different about him is that he depends on the tracheostomy tube to
breathe. It is inserted in the front of his neck and into his windpipe.
He also relies on a gastrostomy tube inserted into his stomach for feeding.
Good listener
He told The Sunday Times he
got through the Primary School Leaving Examination last year with a
score of 219 and is in Secondary 1 at Yuan Ching Secondary School, in
Taman Jurong.
"When I am in school, I go to the pantry for my meals," said Samuel,
covering the opening of his tracheostomy tube with his chin to make his
speech clearer. "I am afraid people can't understand me.
So I don't like
to speak."
His mother, Madam Tan Poh Ling, 41, piped in: "That makes him a good listener and earns him many friendships too."
When he was seven, Samuel started piano lessons. In Primary 4, he learned to play the guzheng, the Chinese zither.
Mr
Lim said: "We wanted him to be able to use music to express his
feelings when he got older."
Samuel's love for music grew and his talent
has been recognised by Club Rainbow, which gave him a talent
development fund grant for the fourth time this year.
"I have
passed my Grade Three practical piano exams and Grade Five for theory,"
said Samuel softly.
"I don't like to speak, I like to play the piano.
Now I play the piano daily and the guzheng twice a week."
His
passion for music and opportunities to perform on stage helped to
develop his self-esteem and he has grown to be a cheerful boy, said his
parents.
The couple, former engineers, work in Mr Lim's family
hardware business, which gives them the flexibility they need to care
for Samuel and their younger children, son You Jun, 10, and daughter
Yong Zhen, seven.
"Samuel is always surprising me with what he
does," said Mr Lim. "Just the other day, he told me that he signed up
for the hip hop dance class as part of his physical education programme.
That's him, never afraid to try new things."
Samuel walks and runs like a typical teenager. On weekends, the family plays badminton together.
An attempt at a normal childhood
When
Samuel was younger, he would go with the family on outings to
McDonald's, even though he could not eat. He has never complained or
asked to eat, said his mother.
Samuel said: "I just find food disgusting."
His birthdays used
to be at a Swensen's restaurant, complete with an ice cream cake. But as
he grew older, he told his parents he preferred not to have such
celebrations.
Madam Tan recalled how Samuel would attract a lot of
attention in public, and she would find herself fighting back tears
when strangers asked about his condition.
But she and her husband
wanted their special son to have as normal a childhood as possible and
did not believe that he should be kept at home, away from stares.
"We wanted it to be easy for him to grow up, so we did not see the point in hiding him at home," she said.
"We
took him to swim at public pools and we taught him to take care of
himself and not let water get into his tracheostomy tube. We would find a
quiet corner in public to feed him." Mr Lim said: "Now that he is
older, he has no problems feeding himself in public when he goes out
with his friends."
Samuel’s recovery, repeated hospital trips and his growing-up years have been a long journey for the couple.
And they are always prepared for the unexpected.
Last
year, Samuel had to sit his Chinese and science papers for the Primary
School Leaving Examination in hospital, as he was suffering from an
intestinal obstruction as a result of his tube feeding.
Strong will to live
Ms Tan said: “We rushed him to hospital on a Sunday night after he complained of a severe pain in his stomach.
“The next morning, I informed the Ministry of Education of his
condition and the ministry managed to arrange for him to take his exams
at the hospital.”
Mr Lim said: “After the accident, doctors told
me that he is a very special boy. Every time I’ve needed to rush him to
the hospital, I would be praying that he survives the ordeal and for his
pain to be reduced. Samuel has shown that he has a very strong will to
live.”
Samuel's school principal, Mrs Saraspathy Menon, told The
Sunday Times that her staff help to make sure Samuel takes his meals
punctually, at three-hour intervals, in the privacy of the staff pantry.
"In class, he is just like everyone else and he has been participating in most activities," she said.
"Samuel
is a pleasant and friendly boy who interacts with classmates and
teachers actively through non-verbal communication such as gesturing,
writing and Facebook posts."
She added: "Samuel is a remarkable
child. He has a smile for everyone and he has never complained about the
challenges that he is grappling with.
"He exemplifies resilience and courage and all of us in Yuan Ching Secondary School have much to learn from him."
What lies ahead for Samuel?
Associate Professor Daniel Goh, head of the paediatric department at
the National University Hospital, has been seeing Samuel since the day
of the acid attack and monitoring his progress.
He said that later this year a team of paediatric surgeons will
attempt to reconstruct Samuel's gullet, and another team will
re-evaluate his upper airway for possible reconstructive surgery later.
"It
is hoped that he may ultimately be able to breathe and eat without the
tubes. The reconstruction will likely be complicated and may require
many staged operations," he said.
Describing Samuel's condition as
unique, he said: "The circumstances under which the injury occurred as
well as the extent and severity of the damage are certainly not
something we have seen before.
"What's also special is Samuel
himself, and his parents. Samuel has been a very brave young man who has
overcome the odds and not only survived the initial ordeal but also
lived to lead a good and fruitful life.
"His parents are also
fantastic in supporting him through the years and have loved and cared
for him very well. Despite his injuries, Samuel has grown up to be a
well-adjusted, polite and delightful young man."
Samuel knows what
happened to him when he was a baby. Asked what he feels about the maid
who assaulted him, he said: “I don’t hate her.”
The rainbow connection
Club Rainbow, a charity that helps children and young people with
chronic illnesses, was one of the first to offer help to Samuel Lim and
his parents after the acid attack. It has remained a source of support
for them.
Its president, Mr Gregory Vijayendran, said: "One of the greatest
joys I have experienced in service in Club Rainbow is watching Samuel
grow up.
"At first, five to six years back, he was a shy, slightly
withdrawn child with a budding musical talent and a quietly expressive
demeanour and manner.
"He has blossomed and matured into a
confident, socially engaged young man with wonderful piano playing
skills that are a gateway to his soul filled with joy, hope and great
sensitivity." Three months ago, Samuel played the piano for more than
300 guests at Club Rainbow's 20th anniversary celebration.
He was among 19 young people who received the charity's talent development fund grant, of between $400 and $800, that night.
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